Progeria UK Registered Charity No. 1115846
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Researchers, parents and patients meet in Marseille. On Jan 16, the Italian and French research groups that work on Laminopathies met in Marseille. It was a combined meeting for doctors and patients, including parents of children with progeria. Dr De Sandre-Giovannoli explained what steps should all be taken before one can start with a trial.
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Progeria UK Registered Charity No. 1115846DESCRIPTION
Registered Charity No. 1115846. Welcome to Progeria UK. We are charity which aims to support children and their families living with the genetic ageing disorder, Progeria. We also support the Progeria Family Circle. In organising an annual reunion for the families living in Europe. Progeria UK was registered with the Charity Commission. In August 2006 by the parents of Hayley Okines. Under our previous name of Hayleys Hope with our work dedicated to raising funds for the Progeria Research Foundation.CONTENT
This website progeria.co.uk states the following, "We are charity which aims to support children and their families living with the genetic ageing disorder, Progeria." We analyzed that the webpage also said " We also support the Progeria Family Circle." It also stated " In organising an annual reunion for the families living in Europe. Progeria UK was registered with the Charity Commission. In August 2006 by the parents of Hayley Okines. Under our previous name of Hayleys Hope with our work dedicated to raising funds for the Progeria Research Foundation."SEEK OTHER WEB SITES
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